There is no cure as of yet for misophonia. Perhaps those that have sold you a “cure” may have actually been taking advantage of you. Since there is no body of research for misophonia that encompasses a cure, it is very important that we stick together and stand up for ourselves. We must champion real, academic and ethically sourced research for our disorder. I know that it can be scary living with a condition that takes over your life. As misophonia becomes more popular, this issue has grown. You can find more information on this topic.
Here are some tips if you believe you have been taken advantage of by a false provider, or, if you are considering an “alternative” misophonia treatment.
- Don’t feel guilty or ashamed that you were taken advantage of.
People that offer false cures are preying on your weaknesses, and are exploiting you. It is perfectly reasonable to try and do everything that you can to “fix” misophonia. Unfortunately, these scam artists have become adept at making their treatments sound legitimate. But, you must consider this, if it HAD worked – would you not have heard more stories of people that were cured? Even if you find ‘anecdotal’ stories that say persons were cured, how do you know this is true? Was it researched? And, if it was, was the research presented by an institution or medical professional?
- Don’t fall for the “they meant well” trap.
Just like abuse victims, many in the communities followings these charlatans may tell you that “they mean well”. Like a cult, these members seem completely blind to any wrongdoings. Even if the treatment does not work, they will assure you that, “they meant well” and were “only trying to help”. Don’t fall for it. Treatment is in the hands of medical professionals for a reason. They have ethical boards to answer to.
- Check the research, and see if it’s ethical.
Sadly, many articles published nowadays are pay to play. These articles will say at the end that the person involved is financially gaining from their research. Pay to play means that the research was submitted to the journal for cash, with a likelihood it would be reviewed/edited/published. In this decaying research model, journals have become predatory. Sadly, simply being published isn’t enough to say a paper is good. Also, question whether or not you trust a study in which the involved are actively and directly making money off their findings. While treatments are not free, most clinical trials will happen in labs before persons are actively being sold to. Doctors cannot simply use therapies at random. They have ethical bounds.
- See if they have been discussed before and read these articles on misophonia being exploited.
These articles on the topic may be helpful to sufferers wondering if they have been exploited.
- Support research from well-reputable institutions.
While there are few published research studies for misophonia, that does not mean that misophonia is not being researched. Scam artists like to point out how few studies exist on misophonia, while misleading you into thinking it is not being researched. This is simply not true! There are numerous studies either in-place, completed, or planned for the future. One must realize that not all studies will include the word “misophonia” in the title. Researchers often work cross-disciplinary, or study the entire brain, not just one “condition”. This also does not account for the depth of research on sensory disorders. You can find a list of the research here.
- Ask for your money back.
Don’t assume that a treatment simply “didn’t work for you” and would for others when you were told it would work. If you believe that the service was not what you expected, contact the provider and ask for a refund. This is within your rights. If you believe you were wrongfully led to believe that this would treat your disorder, you can also report to the consumer bureau.
- Report them!
Please don’t assume that “somebody else will report them if this is wrong”. A large deal of crimes are unreported. Simply believing that somebody else will deal with them, merely means that another person can be taken advantage of. Whether or not your case is fraud will be determined by a governing body. These resources are in place to help you.You can report behavioural analysts here: https://www.bacb.com/notice/
Report Psychologists: http://www.apa.org/ethics/complaint/index.aspx
Consumer Board: https://www.ftc.gov/about-ftc/bureaus-offices/bureau-consumer-protection For other bodies, you can research the board to report them too.
- Share your story.
We publish stories from sufferers about their experiences with misophonia. If you have tried a treatment and it does not work, please do feel free to talk about it. You can publish these anonymously, or with your name. There is strength in numbers and you have the right to have your voice heard. As we collect stories of treatment experience they will be showcased here.