Suffering With Misophonia Interviews: Victoria, 25

Meet Victoria, a 25 year old sufferer of Misophonia from Athens, Greece. This is a quick over-view of her struggles with Misophonia.

A full list of interviews can be found in the book, “Full of Sound and Fury: Suffering With Misophonia” (ebook) It is available via our site or via Print on Amazon.

misophonia-sufferer-interviewAt what age did you start to have triggers for Misophonia?

My first serious trigger was when I was about 8 when I was staying at my aunt’s house, she claimed she didn’t know she was chewing in my ear though it was impossible for her not to notice the angle she was sitting at. Before this, it was very mild – I did notice all my triggers but they were almost non-existent until my aunt did this – as a result I used to get grounded and banned from things because I told people to shut up when they were eating.

What are your top 5 triggers?

Any form of food in someone’s mouth – even my own

Gulping – food and liquids

Hearing mucus in someone’s nose – especially when I’m eating

Whistling

Biting nails

What is worse, visual triggers or audial triggers?

All of the above plus people sliding their fingers on guitar strings, also foot tapping – worst is people shaking their feet so violently one might think their foot might fall off.

When did you learn that there was a name for your condition and other sufferers?

In February 2015 through Facebook.

How did it feel to learn that there were other people like you?

I felt relieved that I wasn’t going crazy, I was told I had to go and get medical help because I was supposed to have something mentally wrong with me like some sort of lunatic because it was causing problems at home, but as soon as I found out about this in February I posted it all over Facebook to prove to certain people who won’t be named that I am not the psychopath they were making me out to be.

I still can’t describe how happy I am now that I can put a name to this.

How do you cope with this disorder?

I often have to remove myself from the situation before I get the compulsive urge to punch someone. I also have to excuse myself from other people’s houses as soon as possible so I don’t do or say something that I will end up regretting.

Are your family and friends supportive?

No, they all think I’m still crazy and that I am using this to cause arguments.

Are you afraid to confront a person when they are triggering you?

I’ve had certain people tell me that I would get my face slapped if I did.

If a person does not respect your condition, how do you react?

Unfortunately, I have to bite my tongue in most situations, other people I will excuse myself and politely explain why I feel uncomfortable, it’s their choice how they want to take that.

Do you have other disorders that worsen your Misophonia?

Severe depression.   

Do you think the name suits the disorder? Why? Why not?

Well it does translate to hatred of noise, so yeah I suppose it does.

Are you on any drugs that do or do not help (antidepressants, anti- psychotics, etc.)?

No.

What do you think could be done to raise awareness?

I think there should be more charities and events and stuff to not only raise awareness but to also help provide the right support for those who don’t have it at home, a good example would be a weekly meeting in a local library or have a charity café of sorts.

   

Explain the reaction when faced with a trigger:

The reaction I have is to punch someone so hard they think twice before setting my trigger off again, the worse the trigger is the worse my fight and flight is. Other than telling people to shut up as a child I have only ever lashed out once (verbally thankfully) asking the person to spit their gum out as they were chewing in my ear (not my aunt this time), I was in the middle of an exam at the time, so I had to really bite my tongue hard to not get up and lamp them one.

Comments on Suffering With Misophonia Interviews: Victoria, 25

  • https://www.facebook.com/app_scoped_user_id/643083810/ Robert Leckington

    I understand. I have had mine since middle school, that would be over 30 years ago! People just don’t understand that simple sounds can set off rage in some people. I self-diagnosed myself in 2013 after I had read an article on another website, found Misophonia.com, and then found the Facebook groups. I think we all have the same feeling about when we first hear of it and notice the similarities in what we have experienced and what we read about. I really hope someday there will be an immediate cure because it can be unbearable to deal with too much of the time. I wear headphones a lot to keep myself somewhat isolated from my triggers. But a lot of the time it can be something that we do not focus on, until we do. It is almost as if we do not pay attention to a sound or a trigger until our brain clicks and then its all over after that. Those that do not understand that statement probably won’t ever understand the disorder. Then again, the more awareness, the better the understanding and hopefully an appreciation for those that have it will develop. Stay up my friends.

    ~ Robert