The Spring issue of Misophonia International focuses on a bright and hopeful future. Yes, suffering with a disorder is hard, but with advocacy and research we have been making great headway. Misophonia International works in partnership with the IMRN.
Miren Edelstein Interview: This interview features Miren Edelstein who was involved in the research paper “Misophonia: physiological investigations and case descriptions”. As a member of the IMRN (International Misophonia Research Network) Advisory board, Miren continues to work on facilitating Misophonia Research. Dr. Jennifer Jo Kanter-Brout discussing the study with Miren, as well as her personal interest in sound and music.
Interview With Mercede Erfanian: This interview features Mercede Erfanian who has been working to research Misophonia. Another member of the IMRN Advisory Board, Mercede speaks about her current views on the disorder, as well as her reasons for becoming interested in the disorder.
Dr. Linda: Rare Diseases and Stigma: Dr. Linda Girgis is the rare-disease writer for SERMO (Sermo (stylized as SERMO) is a social media network for physicians open to licensed M.D.s and D.O.s in the United States, and 23 other English and Spanish-speaking countries). Dr. Linda expresses concern for patients with unknown disorders and offers advice for patients that are going to their doctors with an unknown condition.
Also including stories from sufferers including… “I’m Allergic To You”, “Sensory Spectacle”, and “Art and Misophonia”.
The IMRN is a network of Misophonia suffers and families working together with doctors to support science that will lead to treatment and better practice standards. Dr. Jennifer Jo Brout established IMRN in affiliation with the SENetwork (Sensation and Emotion Network) in order to lead the way toward a new paradigm of research that bypasses lack of governmental funding. IMRN paves the way toward better relationships between Misophonia sufferers, and those who research and treat them. IMRN provides Quality Control through Education and Advocacy. We stand behind research we believe in and stand against that which we do not. Through our network we provide accurate information so that you can make informed decisions about research, treatment and therapeutic products.