When It Comes to Misophonia, We Must All be Advocates

Kathie Lee and Hoda mocked Misophonia live on air two years ago. Unfortunately, not much has changed since then. In this video I link to a small clip, but my article on The Huffington Post, “Kathie Lee and Hoda’s Treatment of Misophonia is a Reminder why Advocacy Is So Important“, I share the full video. My point of this article is not to shame Kathie Lee and Hoda, I believe their words do this enough. My purpose is to add our voices to the conversation. Each time the media mocks us, or makes us a “fluff piece” we are being disenfranchised. For those that haven’t read the piece on Huffington Post, this is my point:

Kathie Lee and Hoda have a voice. They have a television show that reaches audiences across North America. These women have lended their voice to stigmatization. They have lended their voice to the opposition of kindness, compassion, and health awareness. For the sake of entertainment, they have sold their souls. I worry not because these words have been said. I worry because in the world we live in— bigger is better. Unfortunately, for those of us that are struggling in the corners of medicine, with disorders that are unknown, our platforms are smaller. Often, we may feel as though we are shouting in the wind, looking for a sign that we are more than a story.

Advocacy means that each and every one of us must stick up for our disorder.

It means that when we’re sharing articles, we need to check and make sure what we’re sharing is authentic, properly sourced, and backed by weighted science. Every time we like, share, or comment on a video, we are sharing our collective voices. If you’d like to see some articles that we’ve either written, or support, you can check our press links.

For more information on Misophonia Research, please visit the IMRN or check our our research articles.

Shaylynn H.
Shaylynn Hayes is a 23 year old writer, graphic/webdesigner, and
student in Political Science. Alongside Dr. Jennifer Brout, Shaylynn runs the News site Misophonia International. The site focuses on Research, Coping, and Awareness for the disorder. Shaylynn has also been actively involved in the web management and development of Dr. Brout’s research page, Misophonia-Research.com. What used to be a life-ruining disorder has become an interesting and defining adventure that has proven that the things that are “ruining our life” may very well be creating a new, interesting life in the place of the old. Shaylynn is the Editor-In-Chief of Misophonia International, and also writes for HuffPost, The Mighty, and Thought Catalog.