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Vicki Sladowski

Vicki Sladowski

My name is Vicki and I am a lifetime sufferer of Misophonia. I grew up thinking I was a mean, hateful monster, only recently did I learn that I have Misophonia. Like most sufferers, when I found out I had an actual disorder I was so relieved to know that it is not my personality, and most importantly there are people who UNDERSTAND what I am going through and I how I feel. We are not in this alone.

Best Christmas Gift Ideas for Misophonia
CopingRelationships

Best Christmas Gift Ideas for Misophonia

written by Vicki Sladowski

It is that time of year again, it honestly feels like we just rang in the new year. As a wife and mother, I spend my energies trying to figure out the perfect gift for everyone. In all honesty, I am told by many friends and family that they never know what to buy for me and I am sure you also have the hard to shop for people in your life.

If you have a loved one who suffers from Misophonia, there are so many great gift ideas that they will greatly appreciate. Let me begin with the obvious, Noise Canceling Headphones/ Earbuds which can be life-changing.

Noise–cancelling reduces unwanted ambient sounds using active noise control. Noise-canceling headphones are probably one of the top coping tools for a Misophonia sufferer. It is also an item that many people do not normally purchase for themselves. They can be very spendy, but can you put a price on your sanity or well being? Before you go into cardiac arrest when you see the price tags, please keep a few things in mind. First of all, as I said this is an investment in their well- being, can you really put a price on that? Secondly, noise-canceling headphones range in price and brands so you will be able to find a pair that fit your budget.

A solid piece of advice to offer is that you get what you pay for, so keeping that in mind, a $20 pair of headphones will probably not provide the relief that is needed and chances are they may not last that long. It is just my opinion but I think it is better to buy a quality item so you are not replacing them. In the long run, you will end up spending more replacing them when they break than to spend it all at once. I would also suggest purchasing the extended warranty offered since this is an item that will be used very frequently. 

I highly recommend that you purchase these from Amazon or at least check the store return policy. One feature that I really like about Amazon is when you look at the review section you can click on certain words. There is a section that says, “Read Reviews that mention”; aside from the standard topics consumers are reviewing them based on noise-canceling, sound sensitivity, SPD and Autism. Do your research! Reading reviews can really help you when making your purchasing decision.

The products below are priced from Amazon but feel free to search them on other websites to find a lower price. You can also find some of them on QVC or HSN which will typically offer easy payment options so you do not have to pay the full price at one time.

Bose QuietComfort 35 II Wireless Bluetooth Headphones, Noise-Cancelling are amazing. 9.9/10 rating with over 2900 reviews. These are available with a few color choices, 

 

Sony Noise Cancelling Headphones WH1000XM3: Wireless Bluetooth Over the Ear Headphones are listed in 2nd place with 9.6 ratings out of 1300 reviews

 

Sennheiser PXC 550 Wireless – NoiseGard Adaptive Noise Cancelling, Bluetooth Headphone with Touch Sensitive Control and 30-Hour Battery Life is another quality brand

With an 8.9/10 out of 1100 reviews

If you are looking for more of an earbud, Bose has you covered.

Bose QuietComfort 20 Acoustic Noise Cancelling Headphones

 

There are less expensive options available in case you need to purchase them for a child or teenager and you may have concerns about care and loss. Who can blame you there? Just make sure they are compatible with their device and look for the noise-canceling feature as well as battery life. 

What are some other items that you can give without breaking the bank?

Earplugs

Earplugs make a great stocking stuffer. Every Misophone should always keep at least a pair on them al all times. You never know when you may put in a trigger situation. Of course, we all have them, but this is one item that you can never have too many, we drop them or lose them very often, at least I do. You can make a little gift bag with them and throw in a package of alcohol wipes and maybe a keychain with an earplug holder so your Misophone will have them handy when they need to grab them quickly. Believe me, there is nothing worse than being triggered and digging through your purse frantically looking for a pair. I love Moldex sparkplugs. Pairs of 35db earplugs are individually packed in fun colors. They are very comfortable and lightweight. The individual packing is great to leave in your car or purse. You can also buy them in larger quantities (yes they do sell them in bulk!). 

Weighted Blankets

Weighted blankets are all the rage right now for a reason. When you’re stressed, it’s really hard to get a good night sleep. There’s actually science behind why they can help (proprioceptive pressure is excellent for calming/regulating). Also, it’s winter, so these blankets are sure to keep your loved one warm.

A Sound Machine

Sound machines are a device that can play sounds such as white, pink, brown noise or even ambient sounds like nature sounds that can help block out or lessen the severity of triggers. Again these range in price but you can find them almost everywhere. Bed Bath and Beyond has a wide selection and offers coupons.

 

Gradual Alarm Clocks, instead of being jarred awake but the sudden blaring beep, this clock will not jolt you out of restless sleep.

 

Spa Certificates are always a good idea.

Some treatments are geared toward sensory relaxation such as a Himalayan Salt Cave, an AquaFloat, which is an hour-long sensory deprivation pool or tank. Why not give the gift of relaxation? You can usually find amazing deals on the Groupon app, although many facilities may offer online holiday specials, check their website.  

 

Relaxation Putty or Fidgets make great stocking stuffers. 

 

Super Soft Blanket to cozy up in snuggly warmth.

A Gift of Silence is always appreciated.

Give your Misophone some coupons for ME TIME, take the kids and give them a break, time that they need to spend doing something relaxing for themselves! Be creative, maybe give the gift of some candles and bubble bath to go with it.
No matter what kind of budget you have, there is a wide choice of Misophonia friendly gifts that will be sure to please. Merry Misophonia!

Looking for more ideas? Check out our product reviews by other Misophonia sufferers! 

 

December 4, 2019 1 comment
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A Misophones Letter to Santa Claus
Advocacy

A Misophones Letter to Santa Claus

written by Vicki Sladowski

Dear Santa,

I have been a good girl all year. (By good, I mean that I did not kill or hurt anyone that triggered me and for me, that is a huge accomplishment!) This year I would like you to bring me some noise-canceling headphones, noise-canceling earbuds, several sets of earplugs with the highest NRR possible. Please include a variety of shapes and colors so I can coordinate my outfits. I would also like you to send some muzzles for people and duct tape, and a case of corks (those damn whistlers). If it is not too much to ask, I would love a truckload of Fuck Off Spray. Ooh, maybe some WD-40 and Xanax too, it is always a good idea to be prepared for a trigger emergency. Those would be some nice stocking stuffers! You never know when you need to pop a Xanax in someone’s mouth while they are talking. I would also LOVE a remote control that would instantly mute the world. (You are Santa, use your holiday magic and put those elves to work!)

Now that my wish list is out of the way, let’s set some ground rules!

As you know, I suffer from Misophonia, so please understand that I will not be leaving out any milk and cookies for you because frankly, you might crunch or slurp and the trigger would wake me up and I would have no other choice but to whack you over the head with the fireplace poker which would negate the good girl qualification and I assume that would put me on your “naughty” list. Besides, do you really need milk and cookies with your big jolly belly? You tend to get out of breath quickly no one needs to hear all of your huffing, puffing, and panting! Please! Do not stomp your feet with your big ass boots, they make squeaky sounds even when you are not clomping around. You need to be quiet for goodness sake! While we are on the subject of being quiet, is it really necessary to bellow out Ho Ho Ho as you are leaving? No one can be that jolly! One final warning, if you even THINK about ringing your damn jingle bells, please know that I will be wringing your neck!

Let’s talk gift wrapping, the last thing I want to hear is the crinkling of gift wrap as you tuck my gifts under the tree. Maybe you should leave the gifts unwrapped so I am not triggered by the sound of the rustling paper? Oh, what the heck, why not just make it easy, just ship the damn gifts and we can all have a Silent Night.

Merry Christmas,

Vicki

P.S. Please do not park your sleigh and reindeer on my roof unless you can do so without making a sound.

November 4, 2019 2 comments
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Are Advertisers Enticing or Repelling Consumers?
Advocacy

Are Advertisers Enticing or Repelling Consumers?

written by Vicki Sladowski

Dear Advertisers

I have always been a “brand loyal” consumer. Call me a snob but I just do not buy generic or other brands just to save a few pennies. Despite what people think, you CAN taste a difference between Wonder bread and Butternut bread. The reason I can taste the difference may be a part of my Sensory Processing Disorder, I am not sure. With that being said, I would like to add that my children can tell a difference in bottled water. Water! A virtually tasteless beverage and they can tell if I buy a different brand so there must be some truth to my statement. Lately, many commercials have caused me to rethink my brand loyalty and opt to buy substandard products because of their commercials.

I suffer from Misophonia, a debilitating audio processing condition which causes an immediate fight or flight response. Suffers can be triggered by many different sounds, some more common triggers are mouth sounds including (but not limited to) eating/mouth sounds, snapping, clicking, tapping, whistling, etc. In this article, I will be addressing just a couple of specific trigger sounds that seem to be quite prevalent in commercials. People with Misophonia can become irate, enraged, or even panicked when they hear their trigger sounds. Sometimes the sounds cause physical pain. Levels of the Misophonia reaction can vary greatly and can be quite extreme.

An Advertiser’s responsibility is to market the sale of a product or service. Their main goal is to create commercials which are attention-grabbing and memorable. However lately many marketing techniques that advertisers are using to gain attention are alienating consumers with sensory issues and may actually be driving customers away.

Duracell, a very popular brand of battery has released a commercial which shows a woman on a flight with noise-canceling headphones which needed new batteries and a kid shoving chips in his mouth, aggressively chewing with his mouth open. If you suffer from Misophonia, you know the commercial I am talking about as it has been a huge topic of venting in the support groups. Many Misophonia suffers took the time to reach out to Duracell and voice their complaint/concerns with this commercial. I personally sent an email to their marketing department explaining the condition and I included several of the comments from other sufferers from an online Misophonia Support Group. Unfortunately, this commercial is still on the air and many of us have boycotted Duracell batteries. My brand loyalty has gone out the window. I would prefer to buy any other brand of battery even if they require more frequent replacement because of this commercial. The company does acknowledge the need for the noise-canceling headphones but with the way that their message is executed does not show a true understanding of why they are needed.

Colgate toothpaste, their commercial begins with an actor sitting in a movie theater chomping on ice. Are you kidding me? There isn’t even any warning to give viewers a chance to hit the mute button? The very first shot is the insufferable sound of ice crunching? The only thought that comes to my mind is that I hope Luke Wilson busts his teeth out crunching the ice and that I will never be buying Colgate toothpaste again!

Snyder’s Pretzels has a commercial depicting a conference call and one of the idiots on the call is crunching on pretzels without any consideration for everyone else on the phone. WHY?? What is the purpose of that? You can simply advertise that the pretzels are crunchy, we do not need to HEAR the crunch, believe me! The same applies to the many other chip/snack companies. Is it so difficult to omit the poorly mannered people masticating handfuls of chips or talking with food in their mouth? Triggers aside, this behavior is offensive! What a wonderful lesson for our children!

Let’s take a moment to talk about whistling. What the bloody hell is the purpose of someone whistling in a damn commercial? That is definitely another sound that sends most of us into an instant rage. Truth be told, I have been known to throw the remote control across the room when someone starts to whistle on the tv! Whistling is very irritating to people who do not have aversions to sound. Isn’t there a more creative way to get consumers attention?

Allow me to be perfectly clear, it is unrealistic to expect companies to create their promotions around Misophonia sufferers and that is not what we are asking them to do. However, there is truly no valid reason to blatantly emphasize crunching sounds or whistling or any other sounds that may assault our nervous system. Advertisers should be to be a little more sensitive to people with sensory processing deficiencies when creating commercials. The sounds of the child person crunching chips not only contain audio triggers but visual triggers as well. This results in a very adverse reaction within the sufferer that goes far beyond annoyance. It causes both physical and emotional pain that does not easily recede. This request is not just for Misophonia suffers but includes anyone who suffers from a sensory processing disorder as well as autism.

By using these intolerable tactics, you are achieving your goal of attention graving, you are leaving an impression on consumers of your product but it is certainly not a positive one. I will continue to boycott products who use offensive approaches to grab my attention in their campaigns and will encourage my fellow sufferers to do the same (if they haven’t already).

September 13, 2019 1 comment
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Is My Misophonic Child Safe?
Coping

Is My Misophonic Child Safe?

written by Vicki Sladowski

Misophonia is most likely a neurological condition in which the sufferer has negative reactions to sounds. It causes an immediate fight, flight or freeze responses. These responses cannot be controlled any more than the weather, but you can prepare yourself for the storm.

As parents we want our children to be happy, healthy and well-adjusted individuals. Unfortunately, that does not always happen, but we can do everything in our power to help them cope with various situations.

This article is going to be talking quite a bit about safety. Your home is a safe place, in a nice neighborhood, surrounded by family that loves and cares for each other, childproof and safety locks on the cabinets and drawers, you have all bases covered. Do you, really? There is a difference between being safe and feeling safe and that is what I would like you to focus on because living in a world where you are constantly on in fight or flight mode does not FEEL like a safe place. How can you make your child feel safe?

You have observed some obvious triggers for your child whether they got angry, frustrated, covered their ears, ran out of the room, etc. Make a list of those sounds, their reactions and keep a running log of these things. No one knows your child better than you do. Knowing triggers can help you be prepared for various situations. For example, if eating sounds is a trigger, it might be best to skip having dinner at a restaurant, opting for take-out instead. If eating dinner as a family is something you normally do, it is ok to allow your Miso child to eat in another room, or to allow the television or music to play in the background.

When you live with someone with sensory issues, forcing certain behaviors can be devastating to the child and they will not feel safe, not even in their own home. Your child trusts you and expects you to protect him and he needs your guidance until he can protect himself. Never think that exposing your child to triggers will “toughen them up”, not only will it make the triggers worse, he may end up resenting you for it.

Take a moment and think about what things make your child feel comfortable. Does he have a cozy blanket or favorite stuffed animal? Do they like to color, play with blocks, play-doh or Legos? Is there a song or songs that soothe them? I am referring to younger children, but the same concepts will work for older children as well as adults, you just need to make them age-appropriate.

I think it is very important to create a special “ME TIME” space for your child. This does not involve purchasing expensive things, this is about taking a section of his room and making a safe haven for him to retreat when things are overwhelming. I do not want you to think of this as a time out because it is not a punishment at all. When you see your child start to get overwhelmed, take him to the designated place. For younger children you can take them in their room, they may want mommy/daddy cuddles to soothe them, or 5 minutes snuggling with their favorite doll or stuffed animal. Just a few minutes to decompress will help so much, possibly followed by a quiet activity. Have a juice box and finger paint together. Participating in a fun creative activity will divert his attention from the negative feelings, provide an outlet for the negative feelings as well as strengthen your bond. In a nutshell, you want to work on his other senses; looking at pretty pictures, using his hands to mold play-doh or sand, anything to take the focus away from the sound.

Children (especially younger children) do not equate the sounds with being triggered. They just know the sound makes them very upset and angry and they want it to stop but they may not know how to explain it and that is okay, this is a learning process for you. If you see your child being triggered, remove him from the situation before things escalate. Perhaps he is watching a show on tv and something triggers him, hit the mute button. Divert his attention away from the trigger. When you consistently remove your child from the trigger, he will learn “I need to step away” and calm down. Believe me, these habits will be very useful tools that he can use until they discover a treatment or cure.

The next thing I want to talk about is violence. Violence is not acceptable, BUT it is not uncommon for that fight response to make a child want to hit something or someone. Children lack the self-control needed to abstain from this action and may hit their sibling because they coughed too loud. Remove your child from that situation. Personally, I do not think to punish him is the answer because it is a Misophonic response. He just needs some coping skills to redirect that rage. When he is calm, you should address the fact that it is not acceptable to hit. (As an adult sometimes, I have difficulty abstaining from throat punching someone for breathing wrong)

An occupational therapist may also help provide some very useful coping skills that you can use with your child. The goal is to make a safe place for your child as provide the tools and lessons for him to be able to self-soothe so he feels safe.

July 24, 2019 0 comment
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My Loved One has Misophonia
AwarenessRelationships

My Loved One has Misophonia

written by Vicki Sladowski

What can I do?

Communication and Understanding Triggers

Misophonia sounds like a made-up term, “hatred of sound” is the literal definition. As with many other words and phrases, it should not be taken literally. A person with Misophonia does not necessarily hate sound although we can certainly grow to hate them based on our trigger reactions.

Please understand that Misophonia is nothing personal. There are so many inconsistencies with this disorder. Many times, we can make the same sound that sends us into a frenzy and it doesn’t bother us. I have heard many times, “Why can you eat chips and I can’t?” That is one of those unanswered questions.

So many people voice concerns about having relationships with Misophonia. Will I ever find someone to accept me? Will I ever get married? Will I ever be able to have children? The answer to all those questions is YES, you can but it takes work. Before you roll your eyes, please remember that all relationships take work and suffering from any type of affliction is going to add obstacles, you just must both be committed to overcoming those barriers. I am not saying it will be easy, but it is certainly possible.

If you have a spouse, a partner, or child suffering from Misophonia you should really try to support them as best as you can, this is part of being in any kind of loving and supportive relationship. Misophonia sufferers understand that this is a very challenging condition to comprehend, but if there are some things that you could do to help improve our quality of life, wouldn’t you want to? What can you do to help? You can LISTEN.

Communication is so critical in any relationship whether its business or personal. Communication builds trust and openness. Sit down with your loved one when you are both in a calm state. Ask them to tell you what triggers them, how does it make them feel? Do they have the urge to run away? Do they feel rage? Does it make them cry? It is imperative that the sufferer is open and honest with you, that they know that you are not judging them, but that you are truly interested in trying to help. I really cannot stress this enough, this is NOT the time to sugar coat things to try to spare someone’s feelings. If your partner has a habit that is a trigger for you, it is best to be open about it, so you can deal with it appropriately. It deserves to be repeated, this is nothing personal. Our brain translates triggers sending us into fight or flight mode. It does not distinguish that the sound is coming from from the love of our life, it is about the sound NOT the person making it.

Once the triggers are identified, you can work together to develop ways of coping with them. Since everyone has different triggers, I am going to provide a few examples of the most common triggers and some common things that may help.

EATING SOUNDS- We all have to eat so this is not something we can just stop doing. Some people are only triggered by certain eating sounds such as crunchy foods while others are triggered by ALL eating and/or mouth sounds.

For someone that is mildly triggered, they can get through a meal with some background music or the television playing in the background.

Someone with a little stronger reaction may not find the ambient noise as helpful, they may need to wear earplugs or earbuds to stream the music directly in their ears.

Then you have someone with an extreme aversion to eating sounds (like myself), I need to eat in another room, I will leave the room if someone is eating. Think of it as a give and take situation. Perhaps you are sitting at the table with a crunchy snack and the sufferer walks in, it is not an unreasonable gesture for you to stop eating for the few minutes it takes them to grab a glass of water and exit the room. We truly do not expect to walk into a room and have you leave just because you are eating. It is up to the sufferer to recognize that they are interrupting your meal and they should respect you and leave. On the other hand, if the sufferer is sitting in a room you really should not walk in and start chomping away. It is just simple respect for one another. It is not that difficult to do that, is it?

SNORING- This is a very common trigger, even for people who not suffer from Misophonia. Snoring can be a sign of a serious health issue, so I would encourage you to seek medical attention to rule out any medical issue. However, that process can be time-consuming, so most people will not follow through. Earplugs and headphones seem to be a Misophonia sufferers’ best friend, but they are not always the most comfortable to sleep in. The last thing you want to do is wake up with sore or tender ears. There are many options for ear protection that you can purchase over the counter such as foam or silicone that you can mold but sometimes there can be issues. Foam plugs may pop out of your ears, the silicone can get stuck in your hair. You just need to find out what works for you. My audiologist made a custom pair of earplugs that I could sleep in, those combined with my husband’s c-pap machine have improved my quality of sleep.

Some people find sleeping with a fan or white noise helpful.

There was a period in my life where my husband’s snoring was extreme I decided to sleep in another room. We would go to bed and have our cuddling tv time, then when it was time to sleep I retreated to the extra bedroom. Sleeping away from one another may seem like you are crushing the intimacy but if you look at the whole picture, it is helping strengthen your intimacy because you are both getting rest and not resenting one another. You are not punching, kicking or pushing your partner into another position, you are not waking up in a foul mood because you were triggered all night. You can start the morning fresh, happy and without resentment to your partner. Once I explained to him that this was not a rejection, this was something we needed to do for us, he accepted it without feeling as if I was abandoning him.

Sometimes we are not even aware that a sound is a trigger until it is too late. You may find it useful to come up with a code word that your partner can say when he/she is starting to feel triggered before the situation escalates.

Another important question for you to ask… What do YOU need when you are triggered? Just as our triggers vary, so do the ways that we cope with things. For me, I find the best way to recover from being triggered is solitude. This is another reason that communication is key. My husband loves me, he wants to protect me and comfort me. When I am triggered and he is hovering over me asking what I need, my rage escalates, it takes longer to calm down. I finally explained to him that I just need to be alone, it is not him, it is just something that I need to help me relax. Once I explained it to him and he did not see it as rejection, he respects my solitude. Does your partner need to be alone? Do they need you to hold them?

Identifying the needs of one another will definitely help strengthen your relationship. Your loved one has Misophonia, this is a part of who they are, can you accept it and love them anyway? Are you willing to be a part of their support system? If the answer is YES, it’s time to sit down and have that talk.

 

 

 

July 22, 2019 1 comment
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