My Arch Nemesis – Sound ?

sound misophonia nemesis

I’m sure some of you have tried explaining Misophonia to the non-effected people in your life and it probably took a large amount of explaining.

I don’t explain anymore; not one word of apology. I don’t seek out understanding unless it’s absolutely the last option. Why?  Because when I do explain how Misophonia affects me, my audience magically turns into doctors/specialists!

“Tune it out” – I can’t. That’s what makes it a disorder. (Usually followed by an expletive and then their new name – Idiot)

“Walk Away” – I would love to but sometimes that’s not possible especially when I’m dealing with my 5 year old autistic child who is whining and flapping.

“What about Noise Canceling Headphones”? – I tried those and thought they would be great until the noise the headphones made rubbing against my ears made me almost homicidal. I’m still searching for the perfect pair.

When I was younger it was assumed that I was short tempered had low tolerance and was only seeking attention. Growing up with 9 other siblings, all eating at the same table, was definitely taxing. Too many forks scraping and mouths chewing. I always left the table with the strong urge to poke everyone’s eyes out. I was usually yelling or crying.

After a major seizure that resulted in some brain damage, the misophonia became intolerable to the point where I broke my back teeth clenching my jaw and I developed TMJ.

It wasn’t until after that seizure* that I was told I had Misophonia. And here I always thought it was called “Make that sound again and I’ll attack you syndrome”.

The actual diagnosis did help me. I didn’t feel like I was so mentally deficient that I couldn’t even control the way I responded to certain sounds or movements or colors. I finally felt like perhaps there were other people who might understand and who live with this too.

Then a friend told me about Misophonia International.

My response: “Oh my!”  “A large community of people who have had similar experiences and can understand”?!  Suddenly I wanted to explain Misophonia. Suddenly I wanted to help somehow.

Suddenly I am not alone.


* seizure unrelated to Misophonia

I’m am a divorced mother of 4 kids ages, 33, 23, 18 and 5.
I paint and draw and am currently working on a book about my humorous misfortunes.

I’ve had Misophonia all my life however it because much worse after a major seizure.